• You should see your cardiologist at least once a year from diagnosis, or more frequently if recommended

• Evaluation of your heart function should include an electrocardiogram (ECG – evaluates the electrical impulses of the heart and measures the heart rate) and echocardiogram (“echo,” shows pictures of the heart structure and function) or cardiac MRI (gives exact images of the heart structure and function, and shows if there is fibrosis or scarring, in the heart muscle)

• Female carriers of Duchenne need to have their hearts checked every 3 to 5 years if their hearts are normal (more often if recommended) as they can also have the same type of heart problems as people living with Duchenne