We hope that this guide is helpful as you move through your journey of living with Duchenne. Always remember that there are advocacy groups, neuromuscular centres and teams, families and friends who are here to support you every step of the way. Reaching out is always the hardest, but the first step. You are not alone in this journey.

www.parentprojectmd.org
www.mda.org
www.treat-nmd.org
www.worldduchenne.org

www.actionduchenne.org
www.duchenneuk.org
www.musculardystrophyuk.org
www.dmdpathfinders.org.uk/

1. Birnkrant DJ, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne
   muscular dystrophy, part 1: diagnosis, and neuromuscular, rehabilitation, endocrine,
   and gastrointestinal and nutritional management. Lancet Neurol. 2018;17(3):251-267.
   doi:10.1016/S1474-4422(18)30024-3
2. Birnkrant DJ, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne
   muscular dystrophy, part 2: Respiratory, cardiac, bone health, and orthopaedic
   management. Lancet Neurol. 2018;17(4):347-361. doi:10.1016/S1474-4422(18)30025-5
3. Birnkrant DJ, Bushby K, Bann CM, et al. Diagnosis and management of Duchenne
   muscular dystrophy, part 3: primary care, emergency management, psychosocial care,
   and transitions of care across the lifespan. Lancet Neurol. February 2018. doi:10.1016/
   S1474-4422(18)30026-7

Photos provided by Parent Project Muscular Dystrophy. Photo credit: Rick Guidotti, Positive Exposure.