Care Coordination

A care coordinator/care advisor and/or social worker can serve as a central resource for any questions you may have about managing health and caregiving related to Duchenne. Care coordinators help to facilitate communication between your neuromuscular team, primary care providers, family, and community, and can help anticipate your healthcare needs and connect you to resources to meet those needs. Often, they can assist with navigating benefits, and acquiring equipment and resources. Without care coordination and social work involvement, care can become fragmented, recommendations unheeded, and needs unmet.